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From:
Chestnut Tree House
(Uncensored)
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Tiger-Lily’s story - Chestnut Tree House
https://www.chestnut-tree-house.org.uk/blog-post/tiger-lilys-story/
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Mum, Vicky, opens up about what's it like living with a child who has Congenital Central Hypoventilation Syndrome and needs to be constantly ventilated - and how the children's hospice has supported their entire family.
