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From:
National Foundation for Ectodermal Dysplasias
(Uncensored)
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Knowing I Had Incontinentia Pigmenti Earlier Might Have Changed My Life
https://nfed.org/blog/ip-blog-rhonda/
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Tagged with:
hair
skin
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stories of hope
incontinentia pigmenti
inability to sweat
Rhonda spent decades not knowing that incontinentia pigmenti (IP) was the cause of her symptoms, losses, and struggles. Learning the truth brought clarity. Now, she shares her story to help others feel seen and empowered to live fully with IP.
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