The Web's Daily Resource for Huntington's Disease News| Huntington's Disease News
When my wife, Jill, was diagnosed with Huntington’s disease (HD), our world shifted. HD is a cruel, inherited, neurodegenerative illness that affects movement, cognition, and emotions. It’s a diagnosis that […] The post We’re intentionally choosing happiness while dealing with HD appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Some changes arrive quietly, like leaves shifting one shade at a time until the whole tree glows with color. Friendship has been like that for me: not a single dramatic […] The post I’ve learned that friendship, like the seasons, changes over time appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Healthtech company Neuralight is teaming up with the CHDI Foundation to explore the possibility of monitoring eye movements as a method to track Huntington’s disease activity in clinical trials. The […] The post Eye movement could help track Huntington’s disease activity appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
My family has a running list of sayings I’m officially banned from using at home. Apparently, tossing out cheesy phrases multiple times a day is grounds for an intervention — […] The post Please participate in a survey on your Huntington’s clinic visits appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
The transition from summer into fall is beautiful, with cooler breezes, golden leaves, and cozy routines. But for someone living with Huntington’s disease, the change isn’t just about swapping flip-flops […] The post Managing symptoms of Huntington’s as we transition into fall appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Pridopidine may safely and effectively slow Huntington’s disease progression in patients who aren’t taking antidopaminergic medications, which are commonly used for psychiatric symptoms and chorea, or involuntary movements. That’s according […] The post Pridopidine may slow Huntington’s progression for some patients appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Columnist Carlos Briceño finds a way to better understand his gene-positive daughter's feelings through the music of Taylor Swift.| Huntington's Disease News
September has always signified a quiet shift for me. It’s evident in the crispness of the air, the softened light, and the way the days naturally fall into a steadier […] The post Finding the courage to make a fresh start in September appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Swallowing difficulties start in the early stages of Huntington’s disease (HD) and progress over time, affecting both voluntary movements in the mouth and involuntary movements that transport food to the […] The post Swallowing problems should be monitored early in Huntington’s appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Last in a series. Read part one. Choosing genetic testing for Huntington’s disease is an act of courage on its own, as I pointed out in my column last week. […] The post A patient’s view of genetic testing for Huntington’s disease, part 2 appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Nestacell, a therapy prepared from stem cells in young teeth, appears safe and to help adults with Huntington’s disease move better.| Huntington's Disease News
For columnist Tanita Allen, humor often serves as a coping mechanism in life with Huntington's. But sometimes it's more harmful than helpful.| Huntington's Disease News
Initially, columnist Carlos Briceño thought of skipping a soccer match — until his wife reminded him of the importance of self-care.| Huntington's Disease News
Early molecular changes in Huntington’s appear to be largely due to the loss of normal huntingtin protein function, a new study found.| Huntington's Disease News
Speakers at the 2025 HDSA convention highlighted clinical trials testing several treatments aimed at mutant huntingtin.| Huntington's Disease News
Several observational studies to help improve knowledge of Huntington's and speed treatment development are now enrolling patients in the U.S.| Huntington's Disease News
Early care planning helps Huntington's patients and families cope as the disease progresses, speakers at the HDSA annual convention said.| Huntington's Disease News
Developers Prilenia Therapeutics and Ferrer plan to launch a new global study of pridopidine to confirm its benefits in Huntington's disease.| Huntington's Disease News
Participating in dance classes may help people with Huntington's disease improve their balance and maintain their functional capacity.| Huntington's Disease News
A genetic disease like Huntington's affects the entire family tree, not just those who inherit the condition, says columnist Carlos Briceño.| Huntington's Disease News
Huntington’s disease is marked by uncontrollable and jerky movements known as chorea, as well as cognitive, behavioral, and emotional changes. But these symptoms can be more manageable with certain adjustments and therapy approaches.| Huntington's Disease News
Columnist Alexus Jones describes how close she feels to her mom, even when they live apart. But she tries to keep that distance to a minimum.| Huntington's Disease News
Huntington's disease is a neurodegenerative disorder that can cause movement, thinking and psychiatric problems.| Huntington's Disease News
Strategies being explored as treatments for ALS might also be useful in the treatment of Huntington's disease, a study suggested.| Huntington's Disease News
Columnist Carlos Briceño says telehealth has made the process of seeking mental healthcare easier and more comfortable for his wife, Jill.| Huntington's Disease News
A Carrie Underwood song reminds columnist Carlos Briceño and his wife, Jill, how surrendering the wheel can help them cope with Huntington's.| Huntington's Disease News
Depression is the most common psychiatric disorder in people with Huntington's disease, but its symptoms usually can be treated with medications known as antidepressants.| Huntington's Disease News
Columnist Carlos Briceño's wife, Jill, feared the weight loss that can come with Huntington's. She recently learned her fears were misplaced.| Huntington's Disease News
US neurologists are optimistic about the potential for a new Huntington's disease treatment - preferably a gene therapy - per a market survey.| Huntington's Disease News
Scientists uncovered a Huntington's disease mechanism leading to abnormal toxic protein production that was called "one piece of the puzzle."| Huntington's Disease News
To cope with her fears about Huntington's, columnist Alexus Jones tried a therapist-recommended practice. Here's what happened.| Huntington's Disease News
Columnist Carlos Briceño sympathizes with his wife's stress as she handles the TSA PreCheck application process with her Huntington's.| Huntington's Disease News
After receiving an ADHD diagnosis, columnist Carlos Briceño's wife, Jill, carefully considers the best options for managing it.| Huntington's Disease News
Columnist Carlos Briceño finds an online resource to help Huntington's patients answer the question "What is chorea?"| Huntington's Disease News
Columnist Carlos Briceño shares the communication differences between his wife and him, and how they both cope together — yet uniquely — to her diagnosis.| Huntington's Disease News
Because depression often occurs with Huntington's, columnist Carlos Briceño shares his wife's story to remind others that they're not alone.| Huntington's Disease News
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The stages of Huntington's disease can be divided into five stages: early, early intermediate, late intermediate, early advanced and advanced stage.| Huntington's Disease News
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Margarida Maia is a science writer for Huntington's Disease News with a PhD in biomedical sciences. She covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
Ingrezza's effects on Huntington's-associated chorea appear stronger over time, according to an analysis of the Phase 3 KINECT-HD trial.| Huntington's Disease News
Ingrezza has been associated with sustained reductions in Huntington's chorea, regardless of concurrent antipsychotic medication use.| Huntington's Disease News
Treatment with valbenazine significantly lessened chorea motor symptoms in Huntington’s patients; an FDA submission is planned for 2022.| Huntington's Disease News
The once-daily oral therapy Ingrezza, from Neurocrine, has now been approved in the U.S. to treat chorea in adults with Huntington’s disease.| Huntington's Disease News
Columnist Carlos Briceño and his wife delay talking about any HD symptoms they notice, lest they fall victim to the frequency illusion.| Huntington's Disease News
Columnist Carlos Briceño says his wife will deserve a gold medal in vulnerability if she becomes more open about her Huntington's struggles.| Huntington's Disease News
Society wants us to act heroic, but that's not always possible, opines columnist Carlos Briceño, who recommends embracing vulnerability.| Huntington's Disease News
"Jagged Little Pill" brings up many emotions for columnist Carlos Briceño's wife — a refreshing break from the apathy and depression of HD.| Huntington's Disease News
Columnist Carlos Briceño shares how his wife, Jill, who has Huntington's, has developed new strategies to counter her increasing anxiety.| Huntington's Disease News
Steve Bryson is a science writer for Huntington's Disease News with a PhD in biochemistry. He covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
Managing anxiety can be difficult, regardless of whether or not it's a symptom of Huntington's disease, says columnist Carlos Briceño.| Huntington's Disease News
Carlos Briceño welcomes you to his new column, "A Family Tradition," where he discusses his family's journey with Huntington's disease.| Huntington's Disease News
Columnist Carlos Briceño is devastated to realize how much the symptoms of Huntington's are beginning to affect his wife, Jill.| Huntington's Disease News
Columnist Carlos Briceño's wife, Jill, has always been a stellar organizer. But Huntington's cognitive effects are starting to influence her.| Huntington's Disease News
The outlook for the Huntington's community has never been brighter, Louise Vetter, president and CEO of the HDSA, said at the organization's annual convention.| Huntington's Disease News
Different types of genetic tests for Huntington's are available, depending on the time of testing and whether the individual is symptomatic.| Huntington's Disease News
Columnist Carlos Briceño says it's not Huntington's that defines his wife, Jill, but rather her fighting spirit and fierce attitude.| Huntington's Disease News
Huntington’s disease is diagnosed definitively through genetic testing, but initial tests are usually taken to find out a potential family history and any evidence of symptoms.| Huntington's Disease News
Marisa Wexler is a senior science writer for Huntington's Disease News with an MS in cellular and molecular pathology. She covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
Walking, aerobics, and strength training have been shown to help people with Huntington’s to stay active and maintain their mobility.| Huntington's Disease News
Marta Figueiredo is a science writer for Huntington's Disease News with a PhD in biomedical sciences. She covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
Patricia Inacio is a science writer for Huntington's Disease News with a PhD in cell biology. She covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
The online resource More Than HD is designed to help Huntington's patients and caregivers navigate their journey after a diagnosis.| Huntington's Disease News
Two proteins, neurofilament light chain and phosphorylated tau, can serve as markers of Huntington's disease progression, a study found.| Huntington's Disease News
One of the main Huntington's disease Causes is a mutation in a gene called huntingtin (HTT). Learn more about it.| Huntington's Disease News
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Mary Chapman is an award-winning journalist who writes feature stories for Huntington's Disease News. She covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
Symptoms of Huntington's disease include movement disorders, psychiatric abnormalities, and cognitive and behavioral issues.| Huntington's Disease News
An oral granule formulation of Ingrezza, called Ingrezza Sprinkle, has been granted FDA approval for treating Huntington's-associated chorea.| Huntington's Disease News
Ingrezza is an oral medication approved in the U.S. for chorea, or the involuntary, jerky movements that characterize Huntington’s disease.| Huntington's Disease News
Learn more about chorea, the most common involuntary movement problem in Huntington’s disease patients. Chorea usually occurs several years after disease onset.| Huntington's Disease News
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Lindsey Shapiro is a science writer for Huntington's Disease News with a PhD in neuroscience. She covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
Mutant huntingtin protein may drive nerve cell death by poking holes in the membrane that surrounds and protects cells' DNA-filled core.| Huntington's Disease News
Columnist Carlos Briceño's wife, Jill, has always been unstoppable and fiercely independent. One day, Huntington's will change that.| Huntington's Disease News
Researchers suggest people carrying a Huntington's-causing mutation reduce sedentary behavior to delay the occurrence of motor symptoms.| Huntington's Disease News
Columnist Carlos Briceño and his wife with Huntington's, Jill, have a wish list for whoever becomes the new president of the HDSA.| Huntington's Disease News
Education levels, alcohol intake, not smoking, and a good weight before symptoms manifest may affect Huntington's disease progression.| Huntington's Disease News
Columnist Becky Field shares her thoughts following a recent webinar about Huntington's disease and the caregiver burden it creates.| Huntington's Disease News
Levels of GFAP in cerebrospinal fluid (CSF) may be a marker of Huntington’s disease progression, a study found.| Huntington's Disease News
Ingrezza Sprinkle is a formulation of oral Ingrezza that's designed to be easier to swallow, with capsule's granules sprinkled on soft foods.| Huntington's Disease News
Huntington's disease is a neurodegenerative disorder that can cause movement, thinking and psychiatric problems.| Huntington's Disease News