How soccer reminds me of the importance of self-care
Initially, columnist Carlos Briceño thought of skipping a soccer match — until his wife reminded him of the importance of self-care.| Huntington's Disease News
A postdoctoral researcher at the University of Michigan won a three-year grant to support her work investigating the cellular mechanisms underlying Huntington’s disease. The Huntington’s Disease Society of America (HDSA) awarded its Berman-Topper Family HD Career Development Fellowship to Elizabeth Tidwell, PhD, whose project, “Determining the structure of Huntingtin RNA and RNA-protein complexes using single […] The post Michigan scientist gets HDSA grant to study how Huntington’s ...| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
The other week, I hit what I like to call the trifecta of family wins. My wife and daughter actually laughed at one of my puns (a rare feat); I managed to find something my wife, Jill, couldn’t see (she usually finds the things I lose); and, perhaps most surprising of all, Jill said I […] The post How to help children cope with a diagnosis of Huntington’s disease appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Huntington’s disease has transformed nearly every part of my life: my body, my emotions, my routines. But one of the most profound changes has been in how I show up as a friend, and how friendship shows up for me. Huntington’s has a way of filtering out relationships. It reveals who’s truly in your corner […] The post Friendships change with Huntington’s, for better and worse appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Neurodegeneration of the pathways that help relay information from the cerebellum — a brain area involved in motor and cognitive functions — is associated with worsening motor and cognitive symptoms in people with Huntington’s disease, a study reported. Tracking changes in these pathways, or tracts, may help researchers follow Huntington’s progression, the authors said. “The […] The post Brain pathway may track Huntington’s disease progression appeared first on Huntington's Dise...| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
I never expected a lesson in quantum mechanics to help me make sense of my wife’s Huntington’s disease diagnosis. But over the past few years, as I’ve watched Jill navigate the unpredictable nature of this illness, the parallels between her journey and the famous Schrödinger’s cat thought experiment have become impossible for me to ignore. […] The post What Schrödinger’s cat taught me about living with Huntington’s appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Dating is already hard enough in this world of ghosting, swiping, and shallow connections. Add a terminal illness like Huntington’s disease into the mix and it becomes a minefield of awkward conversations, emotions, and misunderstandings. In the decade that I’ve been living with Huntington’s disease, I’ve been ghosted, pitied, grilled with invasive questions, and outright […] The post Dating with a chronic and terminal illness taught me to value my worth appeared first on Huntington...| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Both DNA repair and non-repair genes influence how and when Huntington’s disease develops, according to a study based on genetic data from more than 16,000 people with the disorder that also provides new potential targets for treatment. In addition, these findings reveal complex mechanisms behind CAG repeat expansions, the mutation underlying the disease, and provide […] The post DNA repair, other genes shape Huntington’s disease trajectory appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Initially, columnist Carlos Briceño thought of skipping a soccer match — until his wife reminded him of the importance of self-care.| Huntington's Disease News
There is a quiet rebellion in telling the truth about your body, especially when the world would prefer you stay silent, polished, and palatable. When I was diagnosed with Huntington’s disease, I didn’t know how to talk about what was happening inside me. I had learned, like many of us do, to smile through discomfort, […] The post The power of telling the truth about your body appeared first on Huntington's Disease News.| Huntington's Disease News – The Web's Daily Resource for Huntington's Disea...
Early molecular changes in Huntington’s appear to be largely due to the loss of normal huntingtin protein function, a new study found.| Huntington's Disease News
Speakers at the 2025 HDSA convention highlighted clinical trials testing several treatments aimed at mutant huntingtin.| Huntington's Disease News
Several observational studies to help improve knowledge of Huntington's and speed treatment development are now enrolling patients in the U.S.| Huntington's Disease News
Early care planning helps Huntington's patients and families cope as the disease progresses, speakers at the HDSA annual convention said.| Huntington's Disease News
Developers Prilenia Therapeutics and Ferrer plan to launch a new global study of pridopidine to confirm its benefits in Huntington's disease.| Huntington's Disease News
Participating in dance classes may help people with Huntington's disease improve their balance and maintain their functional capacity.| Huntington's Disease News
At the HDSA 2025 convention, social workers reported that building community among Huntington's patients can help combat disease stigma.| Huntington's Disease News
Columnist Tanita Allen shares how mindfulness and meditation practices offer a sense of stability amid the unpredictability of Huntington's.| Huntington's Disease News
Columnist Carlos Briceño is motivated to advocate for his wife by writing a letter after a disappointing exchange with a service provider.| Huntington's Disease News
Columnist Tanita Allen focuses on the small wins and the proper mindset as part of making progress over the setbacks of Huntington's disease.| Huntington's Disease News
A genetic disease like Huntington's affects the entire family tree, not just those who inherit the condition, says columnist Carlos Briceño.| Huntington's Disease News
Huntington’s disease is marked by uncontrollable and jerky movements known as chorea, as well as cognitive, behavioral, and emotional changes. But these symptoms can be more manageable with certain adjustments and therapy approaches.| Huntington's Disease News
Columnist Alexus Jones describes how close she feels to her mom, even when they live apart. But she tries to keep that distance to a minimum.| Huntington's Disease News
Huntington's disease is a neurodegenerative disorder that can cause movement, thinking and psychiatric problems.| Huntington's Disease News
Strategies being explored as treatments for ALS might also be useful in the treatment of Huntington's disease, a study suggested.| Huntington's Disease News
Columnist Carlos Briceño says telehealth has made the process of seeking mental healthcare easier and more comfortable for his wife, Jill.| Huntington's Disease News
A Carrie Underwood song reminds columnist Carlos Briceño and his wife, Jill, how surrendering the wheel can help them cope with Huntington's.| Huntington's Disease News
Depression is the most common psychiatric disorder in people with Huntington's disease, but its symptoms usually can be treated with medications known as antidepressants.| Huntington's Disease News
Columnist Carlos Briceño's wife, Jill, feared the weight loss that can come with Huntington's. She recently learned her fears were misplaced.| Huntington's Disease News
US neurologists are optimistic about the potential for a new Huntington's disease treatment - preferably a gene therapy - per a market survey.| Huntington's Disease News
Scientists uncovered a Huntington's disease mechanism leading to abnormal toxic protein production that was called "one piece of the puzzle."| Huntington's Disease News
To cope with her fears about Huntington's, columnist Alexus Jones tried a therapist-recommended practice. Here's what happened.| Huntington's Disease News
Columnist Carlos Briceño sympathizes with his wife's stress as she handles the TSA PreCheck application process with her Huntington's.| Huntington's Disease News
After receiving an ADHD diagnosis, columnist Carlos Briceño's wife, Jill, carefully considers the best options for managing it.| Huntington's Disease News
Columnist Carlos Briceño finds an online resource to help Huntington's patients answer the question "What is chorea?"| Huntington's Disease News
Columnist Carlos Briceño shares the communication differences between his wife and him, and how they both cope together — yet uniquely — to her diagnosis.| Huntington's Disease News
Because depression often occurs with Huntington's, columnist Carlos Briceño shares his wife's story to remind others that they're not alone.| Huntington's Disease News
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The stages of Huntington's disease can be divided into five stages: early, early intermediate, late intermediate, early advanced and advanced stage.| Huntington's Disease News
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Margarida Maia is a science writer for Huntington's Disease News with a PhD in biomedical sciences. She covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
Ingrezza's effects on Huntington's-associated chorea appear stronger over time, according to an analysis of the Phase 3 KINECT-HD trial.| Huntington's Disease News
Ingrezza has been associated with sustained reductions in Huntington's chorea, regardless of concurrent antipsychotic medication use.| Huntington's Disease News
Treatment with valbenazine significantly lessened chorea motor symptoms in Huntington’s patients; an FDA submission is planned for 2022.| Huntington's Disease News
The once-daily oral therapy Ingrezza, from Neurocrine, has now been approved in the U.S. to treat chorea in adults with Huntington’s disease.| Huntington's Disease News
Columnist Carlos Briceño and his wife delay talking about any HD symptoms they notice, lest they fall victim to the frequency illusion.| Huntington's Disease News
Columnist Carlos Briceño says his wife will deserve a gold medal in vulnerability if she becomes more open about her Huntington's struggles.| Huntington's Disease News
Society wants us to act heroic, but that's not always possible, opines columnist Carlos Briceño, who recommends embracing vulnerability.| Huntington's Disease News
"Jagged Little Pill" brings up many emotions for columnist Carlos Briceño's wife — a refreshing break from the apathy and depression of HD.| Huntington's Disease News
Columnist Carlos Briceño shares how his wife, Jill, who has Huntington's, has developed new strategies to counter her increasing anxiety.| Huntington's Disease News
Steve Bryson is a science writer for Huntington's Disease News with a PhD in biochemistry. He covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
Managing anxiety can be difficult, regardless of whether or not it's a symptom of Huntington's disease, says columnist Carlos Briceño.| Huntington's Disease News
Carlos Briceño welcomes you to his new column, "A Family Tradition," where he discusses his family's journey with Huntington's disease.| Huntington's Disease News
Columnist Carlos Briceño is devastated to realize how much the symptoms of Huntington's are beginning to affect his wife, Jill.| Huntington's Disease News
Columnist Carlos Briceño's wife, Jill, has always been a stellar organizer. But Huntington's cognitive effects are starting to influence her.| Huntington's Disease News
The outlook for the Huntington's community has never been brighter, Louise Vetter, president and CEO of the HDSA, said at the organization's annual convention.| Huntington's Disease News
Different types of genetic tests for Huntington's are available, depending on the time of testing and whether the individual is symptomatic.| Huntington's Disease News
Columnist Carlos Briceño says it's not Huntington's that defines his wife, Jill, but rather her fighting spirit and fierce attitude.| Huntington's Disease News
Huntington’s disease is diagnosed definitively through genetic testing, but initial tests are usually taken to find out a potential family history and any evidence of symptoms.| Huntington's Disease News
Marisa Wexler is a senior science writer for Huntington's Disease News with an MS in cellular and molecular pathology. She covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
Walking, aerobics, and strength training have been shown to help people with Huntington’s to stay active and maintain their mobility.| Huntington's Disease News
Marta Figueiredo is a science writer for Huntington's Disease News with a PhD in biomedical sciences. She covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
Patricia Inacio is a science writer for Huntington's Disease News with a PhD in cell biology. She covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
The online resource More Than HD is designed to help Huntington's patients and caregivers navigate their journey after a diagnosis.| Huntington's Disease News
Two proteins, neurofilament light chain and phosphorylated tau, can serve as markers of Huntington's disease progression, a study found.| Huntington's Disease News
One of the main Huntington's disease Causes is a mutation in a gene called huntingtin (HTT). Learn more about it.| Huntington's Disease News
Category archive page for Columns.| Huntington's Disease News
Mary Chapman is an award-winning journalist who writes feature stories for Huntington's Disease News. She covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
Symptoms of Huntington's disease include movement disorders, psychiatric abnormalities, and cognitive and behavioral issues.| Huntington's Disease News
An oral granule formulation of Ingrezza, called Ingrezza Sprinkle, has been granted FDA approval for treating Huntington's-associated chorea.| Huntington's Disease News
Ingrezza is an oral medication approved in the U.S. for chorea, or the involuntary, jerky movements that characterize Huntington’s disease.| Huntington's Disease News
Learn more about chorea, the most common involuntary movement problem in Huntington’s disease patients. Chorea usually occurs several years after disease onset.| Huntington's Disease News
Category archive page for News.| Huntington's Disease News
Lindsey Shapiro is a science writer for Huntington's Disease News with a PhD in neuroscience. She covers the latest news and information on a variety of Huntington's disease topics.| Huntington's Disease News
Mutant huntingtin protein may drive nerve cell death by poking holes in the membrane that surrounds and protects cells' DNA-filled core.| Huntington's Disease News
Columnist Carlos Briceño's wife, Jill, has always been unstoppable and fiercely independent. One day, Huntington's will change that.| Huntington's Disease News
Researchers suggest people carrying a Huntington's-causing mutation reduce sedentary behavior to delay the occurrence of motor symptoms.| Huntington's Disease News
Columnist Carlos Briceño and his wife with Huntington's, Jill, have a wish list for whoever becomes the new president of the HDSA.| Huntington's Disease News
Education levels, alcohol intake, not smoking, and a good weight before symptoms manifest may affect Huntington's disease progression.| Huntington's Disease News
Columnist Becky Field shares her thoughts following a recent webinar about Huntington's disease and the caregiver burden it creates.| Huntington's Disease News
Levels of GFAP in cerebrospinal fluid (CSF) may be a marker of Huntington’s disease progression, a study found.| Huntington's Disease News
Ingrezza Sprinkle is a formulation of oral Ingrezza that's designed to be easier to swallow, with capsule's granules sprinkled on soft foods.| Huntington's Disease News
Huntington's disease is a neurodegenerative disorder that can cause movement, thinking and psychiatric problems.| Huntington's Disease News
