NEW YORK, Monday, November 3, 2025 – This November, the Muscular Dystrophy Association (MDA) is honoring family caregivers who provide essential support for people living with muscular dystrophy, ALS, and more than 300 related neuromuscular diseases. Throughout the month, MDA will share stories of connection and advocacy that highlight the critical role caregivers play in the lives of the loved ones they support. The organization is also leading efforts on Capitol Hillto advance policies th...| Muscular Dystrophy Association
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YT Video ID: Z89LvO8n16Y YT Link: https://www.youtube.com/watch?v=Z89LvO8n16Y Video Type: Virtual Learning Programs Sponsors: Edgewise Mitsubishi Tanabe Pharma America Regeneron Recorded Date: Thursday, September 25, 2025 Presenters: Lora Clawson, MSN CRNP, Director of ALS Clinical Services, Johns Hopkins Medicine| Muscular Dystrophy Association
People living with a neuromuscular condition are eligible to win a dream costume reveal in 2026! New York – Wednesday, October 22, 2025 – The Muscular Dystrophy Association (MDA) in collaboration with Magic Wheelchair, has once again launched its Instagram sweepstakes giving a participating community member the chance to win a magical wheelchair costume. The sweepstakes giveaway begins with collaborative Instagram posts on @MDAorg and @MagicWheelchair on October 27, 28 and 29 with rules o...| Muscular Dystrophy Association
Displayed Page Title: Care and Connection That Matter Optional Description: Access to care, trusted guidance, and meaningful programs that support individuals and families—every step of the way. Basic Content Sections: Include Section Arrow: Section Position on Page: 10 Basic Content Section To Use: Mentorship - Mentors Aligned Image Sections: Include Section Arrow: Section Position on Page: 10 Accordion Sections: Section Position on Page: 10 Include Section Arrow: F...| Muscular Dystrophy Association
Nearly 100 MDA Advocates Meet with Representatives on Capitol Hill on November 4. WASHINGTON, D.C., Tuesday, October 21, 2025 — The Muscular Dystrophy Association (MDA) will bring nearly 100 advocates, scientists, and families living with neuromuscular diseases to Capitol Hill for MDA on the Hill, meeting with members of Congress to urge action on critical federal policies that impact access to care, research progress, and support for families. MDA Advocates on Capitol Hill in 2024. On Nove...| Muscular Dystrophy Association
NEW YORK, NY – Monday, October 20, 2025 – The Muscular Dystrophy Association (MDA) today kicked off its largest annual MDA Holiday Retail Campaign, spanning thousands of retail locations nationwide from November through January 2026. For more than a decade, retail partners including GPM Investments, Circle K, and Florida Turnpike Services have been integral to MDA’s mission. Their continued support fuels groundbreaking research, the advancement of clinical care, and advocacy efforts for...| Muscular Dystrophy Association
NEW YORK, Friday, October 17, 2025 — The Muscular Dystrophy Association (MDA) has been named a finalist in the 10th Annual Shorty Impact Awards for two standout initiatives that highlight its leadership in storytelling and advocacy: MDA’s 75th Anniversary PSA - Public Service Announcement Category MDA’s Advocacy Campaign to Protect Medicaid - Public Health Category “These two campaigns capture the spirit of MDA’s 75th anniversary, honoring our legacy while driving forward with purpo...| Muscular Dystrophy Association
Register Now Activity Overview: October 24, 2025 4 p.m.-5:30 p.m ET Activity Type: Live, Virtual Webinar Release Date: Friday, October 24, 2025 Beth Kaufman, MD Clinical Professor, Pediatrics Stanford University School of Medicine Jennifer Kwon, MD, MPH Director, Pediatric Neuromuscular Program University of Wisconsin – American Family Children’s Hospital Daniel L. Menkes, MD, MHSA Professor and Chair of Neurology Oakland University William Beaumont School of Medicine Carrie K Barke...| Muscular Dystrophy Association
MDA is the #1 health nonprofit advancing research, care and advocacy for people living with muscular dystrophy, ALS, and related neuromuscular diseases.| Muscular Dystrophy Association
Table of Contents What is amyotrophic lateral sclerosis (ALS)? Who gets ALS? What causes ALS? What are the symptoms of ALS? What is the life expectancy in ALS? What can be done about ALS? What is the status of ALS research? Download our ALS Impact Sheet Last updated April 19, 2024 What is amyotrophic lateral sclerosis (ALS)? ALS is a disease of the parts of the nervous system that control voluntary muscle movement. In ALS, motor neurons (nerve cells that control muscle cells) are gradually lost.| Muscular Dystrophy Association
