Mikey was just nine-months old when he was fitted with a tracheostomy to help him breathe. His condition is so complex that he needs to be watched and monitored all day and all night. For his mum Chevonne, that often means 24 hours without any sleep. For families like Mikey’s, Chestnut Tree House is a lifeline.| Chestnut Tree House
Meet one of our amazing families who are living with epilepsy and Cardiofaciocutaneous Syndrome. Gracie and Mum Aly share their story about how the children's hospice- Chestnut Tree House - helps them cope day to day.| Chestnut Tree House
Meet Lilly. Lilly is a fun-loving ten-year-old who loves a soak in the bath before bed. Lilly has severe complex needs – and was recently diagnosed with You-Hoover-Fong Syndrome, a rare illness that affects all parts of Lilly's life. Fiona, Lilly's mum, talks to us about the effects on the family of living with You-Hoover-Fong Syndrome.| Chestnut Tree House
Archie was born with half a heart. And at the tender age of six he's already had multiple surgeries to help his condition, including open heart surgery. Archie's Dad, Ed, tells us about the realities of having a child with a life-limiting illness, and what Chestnut Tree House, Children's hospice means to them.| Chestnut Tree House
Before the death of their baby boy, Kate and Sam had never used our services. When Rupert died unexpectedly, he was brought to our special bereavement suite where his family could say goodbye in calm and beautiful surroundings.| Chestnut Tree House
Children's hospices help families after a child has died, find out what support we were able to off Gemma and family when they lost baby Finlay.| Chestnut Tree House
Meet Zac. Zac has Agenesis of the Corpus Callosum – a brain abnormality where there is a complete or partial absence of the band of nerve fibres that joins the two parts of the brain together.| Chestnut Tree House
Mum, Vicky, opens up about what's it like living with a child who has Congenital Central Hypoventilation Syndrome and needs to be constantly ventilated - and how the children's hospice has supported their entire family.| Chestnut Tree House
Mum Hayleigh gives us a glimpse into what it's like living with and caring for her daughter who has a rare genetic condition, Coffin-Siris syndrome, and how Chestnut Tree House hospice has supported them.| Chestnut Tree House
Jack’s story: Jack’s Mum, Emma, reminisces about all the fun times Jack and his family had at Chestnut Tree House and explains why they can’t wait to get back.| Chestnut Tree House