Meet Lilly. Lilly is a fun-loving ten-year-old who loves a soak in the bath before bed. Lilly has severe complex needs – and was recently diagnosed with You-Hoover-Fong Syndrome, a rare illness that affects all parts of Lilly's life. Fiona, Lilly's mum, talks to us about the effects on the family of living with You-Hoover-Fong Syndrome.| Chestnut Tree House
Archie was born with half a heart. And at the tender age of six he's already had multiple surgeries to help his condition, including open heart surgery. Archie's Dad, Ed, tells us about the realities of having a child with a life-limiting illness, and what Chestnut Tree House, Children's hospice means to them.| Chestnut Tree House
Your support helps local children with life-limiting conditions and their families; through the good days, the bad days, and the last days.| Chestnut Tree House
Mum, Vicky, opens up about what's it like living with a child who has Congenital Central Hypoventilation Syndrome and needs to be constantly ventilated - and how the children's hospice has supported their entire family.| Chestnut Tree House